Dandy Kids is a documentary about families who share their life experiences of looking for answers from a limited number within the medical community. Over and over again families struggle to find answers for a diagnosis for which the cause and treatment are not known. Many are told pregnancies should be terminated, and that the prognosis is hopeless. Dandy Kids includes home footage from all the families who desperately need help. Dandy Kids will depict the experts, advocates, and ultimately the heroes who by way of faith, perseverance, and unconditional love live life to the fullest every day! Many times this is done minute-by-minute, second by second, and in the research labs chromosome by chromosome. This documentary is being made in conjunction with Congress, Researchers, Physicians and those families affected by the various types of Dandy Walker malformations, to promote research and raise awareness, and give HOPE!
One boy’s Aunt connects with families around the world in search of what it means to live with the many faces of Dandy Walker Syndrome, and how she can help those receiving a diagnosis to look for answers.
“Dandy Kids” is about a disease called Dandy Walker syndrome. There is very little known about this disease. This movie features families sharing their stories since each case of Dandy Walker is so different. It’s amazing that so many people can be affected by this syndrome and so little is known about it. The stories of the families told of how they learned about the syndrome and dealt with it. I feel that this was a great way to educate not only other families that have children with Dandy Walker but also raise awareness for those who haven’t heard of this syndrome before.